Posts Tagged ‘autism family’
On Our 10th World Autism Day, We Celebrate
Today is World Autism Day. This is our 10th one. As my son has gotten older, the meaning of the day has morphed for me. It used to be about education. Today, it’s about celebrating. Celebrating differences, celebrating progress, and celebrating a boy who has climbed far more mountains than I have. And ice cream and dancing. I have three boys. Three crazy, wild, busy, smart boys. Each of them is exactly who they are supposed to be. My oldest is autistic. There are a lot more words used to…
Read MoreI Can’t Imagine Being You
Each time I make a friend, I wonder how long that person will be able to bear the weight of my friendship. In those first moments conversing, I make predictions in my head: We’ll never be more than acquaintances. We’ll be friends for a few months until she figures out how hard it is to be my friend. We’ll be friends for years but she’ll never invite me to her house. (If I stop inviting her to my house, the friendship will end.) Some people offer well-meant platitudes: “Tell me…
Read MoreOur Hopes and Dreams for Acceptance
This morning I sat my three boys down…well, a few of us sat down and a few of us played Paw Patrol and negotiated a train ride this weekend….and chatted with them about the month of April. I asked them what happens in April. I heard Easter, mom’s birthday, and something about two train movies arriving from eBay. I may have even heard a ‘butt cheek’ in there but I chose to block that out. All true. And then I shared with them how the month of April is the…
Read MoreClimbing Mountains
A few years ago, I posted on this page, trying to be funny of course, about the challenges of putting leggings on a wiggly semi wet child who had just gotten out of the pool. Because let me tell you, it was not an easy task. It was like running a marathon. The comments were sweet and funny, mostly telling me how cute my kid was…but of course, one stood out. The lady said something like…‘I would never dress my kid in leggings. He looks ridiculous (only she said another…
Read MoreThe Questions They Ask Me
The Questions They Ask Me…See these two boys? They are almost exactly 2 years apart. Cooper is 10 and Sawyer is 8. They are like night and day when it comes to most things. My 8 year old asks me the most amazing questions. We have to be alone though. Sometimes he will ask me if his dad is around, but he will say, ‘Mom, can I tell you a whisper?’ But usually he prefers to ask when we are alone in the car or snuggling in bed. How is…
Read MoreThe Biggest Gift
At the park last night, one of these boys played with boys his own age. He went up the slide and scaled the jungle gym like an acrobat. One of these boys chased after the older boys. They tickled him and he loved the attention. He went down the slide a hundred times and said…’mommy watch this!’ The other boy felt the mulch with his fingers, went down the slide twice because his mom asked him too, and spent the majority of his time tapping the metal garbage can and…
Read MoreWhen You Count Your Blessings Do You Count Autism?
We are all too familiar with many of the struggles and negative aspects of Autism. Not only do we live these challenges every day, but we share them. Because they are the hard, the nitty gritty that we need to talk about..to educate, to make people aware and to foster understanding. My son, Stalen was diagnosed on the spectrum when he was 21 months old. He is almost 6 and non-verbal. Autism is not only a part of my son’s identity, it contributes to making him the amazing little boy…
Read MoreOur Sibling Journey Looks Different Than Theirs
My oldest daughter had a close friend growing up who’s mom was pregnant at the same time as me. The girls were around 11 at the time and both were excited to be getting baby sisters. After we each gave birth, about a month apart, we would compare how the babies were growing whenever we saw each other. I remember my daughter was much smaller than her daughter. As the months passed, her daughter crawled and then walked and formed words while mine didn’t. Mine drooled. A lot. Mine gained…
Read MoreA Love Note to My Wife
Autism is hard! Hard for the diagnosed individual, the siblings, the family and on a marriage. When we said “I do” we never expected to embark on an autism journey and we definitely didn’t envision the vows “in sickness and in health” would apply to our unborn child. Autism has challenged our marriage in ways we could never imagine and it has enriched our marriage in ways nothing else could. I could share some of the many autism moments, experiences, pitfalls, disappointments, lessons, achievements, challenges, and wins that got us…
Read MoreThe Playground can be Isolating for a Special Needs Parent
If you live in a city apartment and don’t have your own backyard, the playground is THE place for kids to burn some energy and let off steam. Every other day we pack cookies, water, and a soccer ball and head to my most feared opponent. The park is packed with laughing children. Parents stand in groups and exchange the latest neighborhood gossip. Some have made themselves comfortable on carefully arranged picnic blankets, setting up a snack buffet that could feed half of the city. Others sit in the sand…
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