Posts Tagged ‘autism and minnesota’
Our Autism Regression Plan
I remember thinking the following thoughts: Once we clean up his diet, start supplements, remove the junk, lessen his sugar intake, remove gluten and dairy, and increase his water he will start doing better. Then, this will be fine. Once we start ABA and find the perfect combination of therapy he will start doing better. Then, this will be fine. Once we get him potty trained and fix his constipation he will feel better. Then, this will be fine. Once we get him communicating with his speech device he…
Read MoreWhen are the Autistic Behaviors ‘Normal’?
This morning my autistic son crawled into bed with me at 1 AM. This is very, very rare for Cooper. One year ago, yes, he was a terrible sleeper. He would wake up a dozen times a night and start his days at 3 AM. But, not anymore. My kid is a sleeper now. My first thought…he is in pain. As Cooper’s mom, I’ve learned that when behaviors change in a child on the spectrum, finding the reasons why can feel like trying to find a needle in a haystack.…
Read MoreThe Emotional Weight of Autism
I am the mom to an amazing kiddo. He is almost seven. He also happens to be autistic. We have a bond that is indescribable. I am his voice. He is my purpose. I can read his mind. I can understand every scream, grunt, flap and hum. I know what he needs when he points to his Kindle. I know when he’s hungry and thirsty just by the look on his face. I just know. It’s my job to know. It’s my life. Parenting in general is not easy. We…
Read MoreA Day Without Autism
I’ve been writing about our autism journey for nearly four years now. Which blows my mind. Cooper was diagnosed at age three. Some days I can’t believe we’ve been on the autism path for that long. And then some days it feels like an actual life time. Writing has always been my escape. When no one in my real life understood what I was going through I would write it out. And immediately feel better. Writing was a way to connect with other parents that were on my same path.…
Read MoreWhat Having A Child With Autism Has Taught Me
When my son was first diagnosed on the spectrum I immediately dove into research. That’s the kind of mom I was. I wanted to be educated. I wanted to help my son in every way possible. Of course I took a few days to be really sad. I’m not scared to admit that. The diagnosis, although not unexpected, hit me like a ton of bricks. I remember I felt like the rug had been pulled out from under me. I didn’t know what to do, how to act, or where…
Read MoreAutism and Regression
Hey all. Yesterday we had a heartbreaking day and it hit our family pretty hard. And to make it worse it seems that something is super ‘off’ with Cooper. We can’t seem to get him regulated and as we sat and analyzed his behaviors last night we realized he’s been off for over a week. And for the life of us we can’t figure out what’s changed in his world. This regression is dramatic. And a huge shock. This is one of the hardest parts of raising a nonverbal kid.…
Read MoreThe Night My Boys Became Brothers
I have two sons, Cooper is six and Sawyer is four. They are both blonde, adorable, strong-willed, and funny. They are both obsessed with their mama. They are loud. They are both snugglers. They have been brothers since Cooper was almost two. And yet, it wasn’t until recently that they even began acknowledging each other. Yes, it broke my heart for years. There are days when it still does. I can almost picture what my life would be like if my boys were able to play each other. If I…
Read MoreIsolation and Autism
It was a cloudy cold Sunday in Minnesota so our family took to the beach. This is common for us. Many families of autistic children go to highly visited places on days with bad weather. Less people, less stress, less stares, and less chaos for our kids. I will be honest and say that if we get to an event, park, beach and there are a lot of people I instantly tense up. My little man is a mover and a thrower. He has no understanding of safety or social…
Read MoreCost Effective Health Insurance
I want to share some of the craziness that is managing my Autistic son’s benefits. I am very vocal about how everything is a fight…and the services are in a vacuum. The right hand isn’t talking to the left hand. And it’s exhausting. To be honest, managing my son’s benefits is a full time job. I mean that wholeheartedly. Six months ago I learned about Cost Effective Health Insurance Premium Reimbursement. So, listen up if you live in the state of Minnesota. And, if you live in another state, it’s…
Read MoreAutism and Age
Have you stopped thinking of your Autistic child as a certain age? I think I sorta have. While Cooper is six…cognitively, socially, behaviorally, emotionally, he is all over the board. He ranges from six months to probably four years old. Yes, he wears 6T clothes. And yes, he was born in 2010. On paper he is six years old. But in my mind, he is almost his own unique age. And, I don’t think it even is a number. In my world…age and autism don’t correlate. Having a disabled child…
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