For the last three and a half years I’ve told you I loved you every night before bed. As a baby I would hold you close in your snuggly swaddle. You eyes would get heavy and your small body would melt into mine. It would feel like an eternity since you hated to sleep. Fear of missing out people would joke. As your beautiful baby blues would eventually close you face would be so peaceful. I would ever so carefully place you in your crib with promises to see you…
I’ve wondered, when did autism purloin you? Did it creep in one night, and snatch the words from your tongue? When did it show up, and make it so hard for you to look at me? I want to hold you. I want to hug you. I want to play with you and sing with you. I want to hear you say you love me… Autism. Sometimes it keeps you from me. You don’t always want to look at me. You don’t always want to be held, or hugged, or…
I find myself talking a lot lately about speaking up for those who cannot speak for themselves. For me it’s personal. I feel things now and see things now in a way I never did before I was a mom, but truthfully mostly before I was Brendan’s mom. I often wish I could scream at the world…don’t you see it, how can you not? And then I remind myself, I didn’t always see it either. And not because I didn’t care. I didn’t see it because it didn’t affect me.…
My sweet girl, You have no idea how much I love you. But the truth is, I don’t yet know how much you love me either. We are a mommy and daughter communicating in different languages and I am still desperately trying to learn yours. You don’t hug or kiss me yet, but that’s okay. I just want to know…. Do you feel loved when I hug and kiss you? When I smile and tickle you? When I sit and try to play with you? When I sing for you…
Dear Mama, Do me a favor, and remember every detail of this day—all of the words, sights, and sounds. Remember the tone of the doctor’s voice, and the way the receptionist smiled. Remember the way your heart hammered in your ribcage when you first heard the sentence. We believe it is Autism Spectrum Disorder. It was raining the day my son Jack was diagnosed. The doctor was very gentle, and kind. He watched Jack whirl and spin around the small room and collapse in tears when he bumped his shin…
In the 1950s, it was “refrigerator mother” syndrome. Autism, they said, was the result of a mother’s relational coolness. Today, it’s “toxic mother” syndrome. Autism, they say, is the result of a mother’s toxic burden. I spoke with a homeopath over Skype this week. As I started to tell her a little about my eight-year-old son, who has nonverbal autism, she interrupted me. “You’ve got a face full of acne, eh?” I just stared at the computer screen. “Eh?” she repeated, gesturing to her own face. “Right,” I admitted. “And…