Posts by Heather Woodring
A Seat at the Table: Championing Severe Autism in D.C.
It has taken my husband, Michael, and me a couple of days to recover from four plane rides and three days of navigating D.C., but we are so glad we seized the opportunity to do it. Individuals with severe/profound autism and their caregivers/families are so often left out of the conversation and robbed of a seat at the table. We are isolated and forgotten, even though 27% of individuals with ASD are severe/profound. The Authentic Awareness Assembly event, put on by the National Council on Severe Autism (NCSA), gave families…
Read MoreA Year of Purpose: Finding Joy and Strength as a Lifelong Caregiver
I recently marked one year since I took early retirement from my career to stay home with my son, Zachary who lives with severe autism. I have always worked full-time throughout his life, but once we realized he would always require 24/7 care, our goal was for me to care for Zachary full-time after he graduated high school. As a senior, he started saying, “Stay home, Mama,” every morning, so we knew he had the same goal. It took us about three years after he graduated to meet that goal.…
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