Navigating Nonspeaking Autism at Age 12

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When my son Cooper was diagnosed with autism at age three they told me he was nonverbal.

I didn’t even know that was a thing.

At age five they told me he might never speak.

I didn’t know that was a possibility.
At age six the silence was deafening. So we dove into alternate forms of communication.
Sign language.

Spelling.

An AAC Device.

And I learned in a painful beautiful way that communication was the goal. Not words.

It took time though. Time for my mind and heart to accept. To settle in.

This morning, before his siblings woke up, he tapped me on the shoulder.

It was early. My coffee was hot. My brain was fuzzy.

‘M – AW – M’ (mom)

He touched my arm gently. Then my cheek, turning my head to look at his iPad.

Airplane, said the iPad.

I looked to him. His eyes were full of joy.
He covered his mouth, giggling!

A-A-A-A he exclaimed.

‘Do you want to fly in an airplane Cooper?’
The most joyous yes accompanied by a hand up in the air.

‘WHA-WHA-WHA!!!!’

‘Do you want to ride in an airplane and go see the whales Cooper?’
Another yes. This one with clapping!

Then he tapped my chest and his. Back and forth.

‘M – AW – M’ (mom)

‘M-EEEE’ (me)

‘SSSS-AW-ER’ (Sawyer)

I repeated it back to him.

‘Do you want to ride in an airplane and go see the whales with mom and brother?’
That got me a hug. And the sign for thank you.

Communication. It’s a glimpse inside his world.

It’s his needs and hopes and dreams and his joy.

It’s the most beautiful thing.

This is our nonspeaking autism at age 12.

Airplanes and whales and a trip with his brother.
Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook.
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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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