This is What We Work For
This morning I asked my son Cooper if he wanted four or five of something. And he responded with a happy sound and five fingers thrust high in the air.
I went on with what I was doing and then paused for a second.
Communication. Choice. Independence. Happiness.
It is the most beautiful thing.
I’ve been told over the years that I want to change Cooper. That I want to make him less autistic.
Ha. It’s so far from the truth.
My goal as a mom has never, and never will be, to make an autistic person ‘less autistic.’
My goal is to give him a way to communicate his wants and needs.
I want him to be able to tell me when his ear hurts. Or when he wants a snack and needs to go to the bathroom.
I want him to independently be able to wash his hands when they feel sticky from syrup instead of screaming and self injuring over the icky feeling.
I want to know where he wants to go this weekend. He is a part of this family and gets a say too. Even if it is another train museum.
I want to give him all the skills he needs to ask for help from a stranger and the confidence to be himself.
And that he wants five and not four. Because five not four can make all the difference when he’s sitting in a loud lunchroom. It wasn’t very long ago that he couldn’t answer a question like four or five. But he can now. And we are so thankful.
This is what we work for. These seemingly simple exchanges that most wouldn’t give a second thought too.
He’s so excited for school today. He has his backpack on and is waiting by the door. He even asked for ‘A-A-A.’ Which is Dad. Because Dad brings him to the bus.
Communication. What a beautiful thing.
Cooper is exactly who he is supposed to be. We will never stop striving for that.
Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.
