Balancing on a Tightrope

We are on a tightrope…

This week my son Cooper had three of his best days ever at school. He is going to be 10 in a month or so and started fourth grade this year. It’s a pretty big deal for him.

He also had one very challenging day. Which we are all allowed. Bad days happen. But afterwards, he used his speech device to tell his teacher he was sad.

She didn’t know why. I didn’t know why. He is unable to tell us. It’s heartbreaking. And the hardest part of being unable to communicate.

That night he was full of anxiety. The kind that would bring me to my knees. We had to make sure his body was safe…we had to protect him from himself.

The next morning I prepared for another tough day. Only to find him happy. Healthy. Smiling.

I was prepared to tip of the tightrope and ready to hang on for dear life. But he was fine. He was spared from whatever was happening.

I’ve spent the last few days reflecting on the why and the how and trying to accept that the rules don’t always apply for him. Up isn’t always up. And it doesn’t always make sense.

Sometimes, it’s just hard and confusing.

On Sunday we are going to a pool to celebrate his great week. Because he earned it. And so did his brother. Another one who will never let him slip to far off the rope.

We hang on here as tight as we can. We balance. We hold on. And we move forward.

Together.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

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Finding Cooper's Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you're never alone in the struggles you face. And once you find your people, your allies, your village....all the challenges and struggles will seem just a little bit easier. Welcome to my page!

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