The Future Of Autism

When my son’s autism was discovered at age three, I focused on the present. I dove into getting him all the help he needed. And our family too.

When he was six, I started to think about the future. About forever. But I wasn’t ready yet. And many people told me not to think about it. They told me to wait. To take it day by day.

Now that he’s nine, almost double digits, I can see the future with some sort of accuracy. I like to say we all settled into autism. Him and our family.

And while his future, our future, looks different than most, I see unbelievable beauty too. I see hope. I see faith. I see a wonderful life. I see a family who treasures a boy and the gifts he brings to the world.

But there are also parts I hadn’t thought of. Parts of development that most people take for granted. Parts that are still hard for me to see.

Sometimes they take my breath away. Like a sneaky punch to the side. They come out of nowhere.

I didn’t know he’d get so big and so strong.

I didn’t know I’d have to place my hands over his and wash his hair.

I didn’t know he’d always need someone to hold his hand.

I didn’t know he wouldn’t be able to communicate pain to me. And that often, he would self-inflict it. No one prepared me for that.

I didn’t know he’d run into traffic or walk off a dock.

I didn’t know I’d always have to be on high alert.

I didn’t know how much protection he would need. His vulnerability is unbelievable.

I didn’t know people would stare at us.

I didn’t know I’d have to prove his worth repeatedly to a world that often overlooks him.

But there are other parts too.

I didn’t know a hug or a touch could be special.

I didn’t know a sound or a word could mean so much.

I didn’t know how much I could fiercely protect someone.

I didn’t know how I would look at my life, with unbelievable amounts of gratitude, and thank God for what I have been given. Because we are the lucky ones. 

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.