A Letter to my Little Brother

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Hey Sawyer,

I’m hoping that someday I can say this all to you. But there is a chance that I might never be able too…

I’m hoping that when you are older you will read this and understand.

I know you think I have nothing to say. I do.

I know I confuse you. I’m so loud. I flap my arms. I don’t notice toys. Or play sports. Or like to leave our house.

I don’t have any friends. Or really pay any attention to you either. I just like mom and dad.

I don’t play like you. And I know that really confuses you. But you don’t play like me either.

Sometimes I feel like you look right past me. But I guess I do the same thing to you too.

You don’t make sense to me Sawyer.

I’ve overhead mom saying that she wishes more than anything that we could be friends.

You think I’m loud Sawyer? And that my noises are weird. You should hear what you sound like to me.

I try to cover my ears. I try to ignore you. But sometimes I can’t.

Sometimes when I get so frustrated I hit you. Never anyone else. You are my safe space though. You are my brother.

I know you tease me sometimes. I know your friends do too. I’m like the annoying little brother…except I’m two years older.

I wreck your forts. And smash your Legos. I’m always around when you and your friends are trying to play.

I eat your Nerf Gun Bullets. And follow you around. I like to sit near you. Only I don’t know what I’m supposed to do next.

I know that you, mom and dad and Harbor leave once a week to do something. I hear that you go to restaurants. Or go ice skating

I stay at home with Meggy or Alex. They are my care attendants. Or whatever that means.

I like staying with them. It’s quiet. And we do puzzles and do things that I like to do.

I’m okay with you getting all of mom once a week brother. I can tell you need it.

I know you think mom loves me the most. Because I take up so much of her time. But she loves you just as much.

I see the way she is so proud of everything you do.

I can’t do most of the things you do. So I’m glad she has you brother.

When you look back on our relationship I want you to know that you mean so much to me. Even though I don’t show it in the normal way. But I’m hoping that some day, you’ll take notice.

I’ve been carrying this picture of us around for seven days now.

I normally only carry pictures of trains and boats. And mom and grandma. I like baby pictures too. But rarely anyone or anything else.

And I only carry them for a few moments at a time before I shove them under a couch or behind a bed.

I never seem to get too attached to any one photo.

Mom even noticed how I hold this picture so tightly.

I know it confuses her because I don’t really seem to care about spending time with you. Or acknowledge you.

But this one makes me feel safe. I like that we are hugging. You are paying attention to me and I’m paying attention to you.

I’ve been sleeping with this photo for a week now. I wish you’d notice.

I love how we look so happy together.

So calm. We look like friends. You’d never know that we are so different.

If in years to come, I’m still not able to tell you I love you, please know that this is it.

I’m showing you.

You are my safe space brother.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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4 Comments

  1. Kazza on December 26, 2018 at 6:22 pm

    What an amazing thing that your boys will be able to look back and see their childhood through your (and each other’s) eyes…



  2. Debra Davidsom on December 27, 2018 at 7:28 pm

    This is amazing!!!!! I absolutely love this. That Cooper is so a were of everything around him and himself. Kate you must be so proud of Cooper. This proves that there is a very sensitive, caring smart person inside Cooper weighting to bust out and show the world who Cooper really is. Thank you so very much for sharing this with all of us.



  3. Susan Anderson on January 11, 2019 at 8:37 am

    So heartfelt. I love the picture. When you said that Cooper knocks down Sawyer’s Legos, it instantly reminded me of an incident between my boys when they were little. Scott, my neurotypical was just two. Paul was four and wearing a too small dinosaur costume, walking around our playroom on the balls of his feet, talking to his shadow, like Peter Pan, (“I believe I found my shadow”), he said it over and over again in the same tone as the Disney movie. Scott was building a tower of giant cardboard blocks while Mark, our third son crawled around watching everything in a T-shirt and double cloth diaper. As Scott interacted with the camera, Paul ran over and knocked down the tower. Phooey. It’s been a complicated relationship, my three boys. At 29 years old, (in a few days), Paul bought his own gluten free cake to make, and the candles, a two, and a nine. Scott is selling toys in LA, and Mark is a fish monger in Wilmington, NC. But they all love each other. Building towers, knocking them down, rebuilding them. It’s all love.



  4. Mary L Barbera on March 25, 2019 at 9:52 pm

    So powerful Kate! Your boys are so lucky to have you as their mom.