Sharing the Realities of our World
We have been having so many wins lately with our severely autistic son. He is thriving. Our family is letting that breath out we have been holding for years. I feel like many parts are actually getting easier. And yet, the roller coaster continues.
Our son had his longest behavior to date yesterday, 10 minutes, and had to be put into a hold. I spent the night feeling guilty. And worrying. And wondering why his life has to be so hard.
Why can’t it just be easy? And as he ages, I know that I can’t always be there to communicate for him. I can’t always be there to keep him safe. It makes me wonder ‘if’ it will ever get easier for him. What is the ‘magic’ solution?
Sometimes I wonder how we got here. I will look at him and think…why? How? Talking about holds, tracking behaviors, going to meetings, replacing iPads. It’s surreal sometimes I guess. The ebbs and flows. The ups and downs. The two steps forward and three steps back. The feeling of never really getting ahead. It can drain a person.
I share the realities of our world friends. And I will always do it with respect, optimism and hope. But sometimes, it’s hard to always wonder if it will ever get any easier.
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Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook and subscribe to our newsletter.
