Eye Contact and Autism

a0f318975ffbc37c07f0b856c1d3b393When you google signs of autism…or talk to someone about autism….you typically hear the same signs. Lack of eye contact. Lack of affection. Withdrawn behaviors. Social delays. Cognitive delays. Playing with toys in odd manners. And the list goes on.

When I used to ‘think’ about autism I would think of a really withdrawn child. I would think of a kiddo that didn’t hug or give love. And that wasn’t Cooper. So I told myself it wasn’t autism. I would lay in bed at night and mentally tick of the things he did and didn’t do. I would spend hours. I would even make lists of the traits he had and the traits he didn’t have.

I was very naïve. And exhausted.

And I remember doing those Well Child questionnaires at the Pediatrician. You know what’s funny….Cooper was so wild and out of control in the waiting room that I NEVER got to actually complete one of those. I would start, struggle to write, chase Cooper, stress out, and AVOID completing it. Vicious cycle of avoidance.

Don’t get me wrong…I mentioned ALL of my concerns to  my pediatrician. But, Cooper didn’t have the tell tale signs and she would just say he was strong willed.

I didn’t know that I could have an autistic child that WAS very loving, but nonverbal, that made eye contact, but didn’t know how to play with toys, and struggled with transitions and didn’t care about making friends or his brother but loves his mom and dad.

I would throw around words like ‘strong willed,’ ‘late talker,’ ‘challenged.’ But around 2 1/2 those words started to not sound right. The older Cooper got the less I could hide the delays and make excuses.

But through it all the eye contact stayed constant. He has never, ever struggled with making eye contact with an adult.  He checks in for validation, affection and even to get a reaction. But what I didn’t see is that he did not make eye contact with other children.

That damn eye contact threw a lot of people off in the diagnosis process.

So, if you were to ask me….How did I know Cooper was autistic? Or when? I would say that deep down I knew it from day one. I knew something was off. But, I didn’t know what. And I didn’t know what to do or how to fix it.

Here is a video of Super Cooper from yesterday morning. Every morning is the BEST MORNING OF HIS LIFE. He smiles. And giggles. And gives huge hugs and kisses. I’ve always wanted to get his morning happiness on camera. He is such a love.

https://youtu.be/VSFtkJDeioE

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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2 Comments

  1. Kim on June 2, 2015 at 12:37 am

    He is going to be just fine …



  2. Cyn on June 2, 2015 at 3:16 pm

    The eye contact thing…gah!!! My guy the same…wouldn’t look peers in the eye and still has troubles with it but with family he loves and comfortable with lots of strong eye contact. My son shares that “its hard” when I say you have to look at someone to show that you are listening to them or you are speaking to them. He says its hard because he has so much to remember with friends…they talk and move so fast and he has to remember what to say, how to say it, get his mouth to move over hard words, try to talk when its so noisy then he tries and someone asks another question or has moved on. So basically a lot going on…his teacher has told him to orientate his body towards the person he is talking to and try and give a little eye contact and work up to it. Its working…

    As for Cooper….Ooh my gosh he’s cute. I saw so many interactions with you and look at his mouth moving and sounds!!!! He keeps it open quite a bit like my son used to do. He is trying to figure out his jaw and mouth etc and my son’s SLP would say his mind is trying to work out the movements. Its a good sign:)

    Cooper also reminds me of a boy who is in Grade 2, non verbal and ASD that is with my son at school. This little guy socializes so well and keeps up with everyone, has friends but the apraxia is holding the speech back. But because he’s around the other kids so much he is trying to hard to try to talk and refuses to use his iPad to communicate because he wants to talk so bad. He uses the iPad more to do his school work because printing is hard but typing is easier.