A Note from Kate
"My hope is that Raising Autism and the Raising Autism Workbook become the first books caregivers reach for after an autism diagnosis and the ones they continue returning to for years to come. Like What to Expect When You're Expecting has been for generations of parents, I hope these books become trusted companions that provide practical guidance, compassionate support, and the comforting reminder that while no two autism journeys are the same, no caregiver has to walk theirs alone."
- Kate Swenson
- Kate Swenson
From the creator of Finding Cooper’s Voice, New York Times bestselling author, and one of today’s leading autism advocates comes an essential guide for caregivers—written with the authority and honesty of a parent who has lived it.
Caring for a child with autism can be filled with love and purpose—but also isolation, exhaustion, and the fear that no one truly sees how hard it is. In this heartfelt and practical guide, Kate Swenson offers invaluable firsthand perspective and concrete advice for the challenges many caregivers are left to face on their own.
Drawing on research, advocacy, and her lived experience as the mother of an autistic son, Swenson tackles the question so many caregivers ask: How do I care for my child without losing myself? With honesty and compassion, she helps readers navigate the emotional realities of caregiving while providing tools to help process your emotions, prepare for the future, and take meaningful steps forward. Inside these pages, you will find guidance and reflection around some of the biggest parts of caregiving, including:
- Understanding and navigating diagnosis
- Finding, obtaining, and maintaining services and supports
- Advocating for your child
- Processing emotions and prioritizing your own well-being
- Building a sustainable and joyful life for your family
- Planning for your child’s future financially
- Obtaining guardianship, housing, and independence for your child
With clear advice and hard-won wisdom, Raising Autism demystifies the complexities of caregiving and offers support, guidance and a place to begin. The autism journey may not always be easy, but you do not have to walk it alone.
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✿ The Journey Continues ✿
From the creator of Finding Cooper’s Voice and author of Raising Autism comes a guided workbook to help caregivers reflect, plan, and take meaningful steps forward.
Caregiving can leave you with more questions than answers: What support does my child need? How do I prepare for what’s next? How do I care for myself, too? Based on Kate Swenson’s essential guide, Raising Autism, this companion workbook gives caregivers a place to pause, process, organize, and begin.
Whether you are navigating a new diagnosis, advocating for services, planning for the future, or trying to care for your child while also caring for yourself, the Raising Autism Workbook offers practical tools to make the journey feel less overwhelming. With prompts, checklists, planning pages, and reflection exercises, it provides space to:
- Reflect on the emotional realities of caregiving
- Identify your child’s needs, strengths, and supports
- Prepare for appointments, school meetings, and advocacy conversations
- Organize resources and important information
- Plan for milestones, decisions, and transitions
- Create realistic steps toward stability and peace of mind
Compassionately designed and easy to use, this workbook is the perfect companion for caregivers who want encouragement, clarity, and a path forward. You may not have every answer today—but with the right support, you can take the next step.
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Kate Swenson is a New York Times bestselling author, speaker, and one of today’s leading voices in autism advocacy. She is the author of Forever Boy, coauthor of Autism Out Loud, and author of the forthcoming Raising Autism: An Essential Guide for Caregivers and its companion workbook.
Kate is the creator of Finding Cooper’s Voice, a community of more than one million people who have connected through her honest and deeply personal storytelling. What began as a way to share life with her autistic son, Cooper, has grown into a place where caregivers and families can feel seen, supported, and less alone.
Through her books, speaking, advocacy, and community-building work, Kate shares the realities of caregiving with honesty, humor, and hope. Her work makes space for the joy, grief, beauty, and complexity that can exist together—and reminds caregivers that their stories and well-being matter, too.
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