My Firstborn Son’s Autism Diagnosis Humbled Me

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My firstborn son’s autism diagnosis humbled me.

Why you may ask?

Because it was the first thing in my life that I couldn’t necessarily make better or easier or even change.


See, I am a fixer. And I am a hard worker. Two traits that I pride myself on.


And suddenly I was given a baby who didn’t develop typically. And never learned to talk. Or play. Or to understand this world.

Autism they said.

Severe nonverbal autism with a language impairment were the exact terms.

He was three years old.
His hair was course and blonde.
His eyes hazel.
A constant red to his cheeks.
He smelled like the wind.
He was mine.


He was perfect to me. And I so desperately wanted the rest of the world to see it too.


So I dove in. I researched. I made phone calls and appointments. I never stopped. Not for a second.

I just had to help my boy.

Only, it didn’t work. Not for a lot of years.

There was no correlation between my hard work and his success. Or so it seemed.

Autism humbled me. Because I couldn’t make it better. Not for him. And not for me.

I find myself in that place again. Only it’s not autism this time. It’s a different obstacle.

I didn’t cause it. It’s not my fault. And no matter how much I do I can’t fix it. And there is no help. Not for me anyways.


Success is not always correlated to me. Or what I do. Or how hard I work.


I am just the mom. The wife. The daughter. The woman. The advocate.

I am humbled. Once again. By this life. This unrelenting, beautiful, gracious, broken life.

I’ll leave you with this. A quote that carries me through. I whispered it from my knees all those years ago. And continue to do so today.

“God, grant me the serenity to accept the things I cannot change, courage to change the things I can, and wisdom to know the difference.

And spoiler alert…my son is exactly who he is supposed to be. It was me who had to change. I just had to find the courage to do so.


I need to find the courage again.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook.

Read more blog posts on Finding Cooper Voice here.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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