Now That I Understand

sawyer 5

I used to think a lot of things about my son’s autism.

Back before I really understood. Back when it was just a word on a piece of paper slid across the table to us. Slow like. As if the contents held the secrets to our future.

I thought it was something that was given to him. Placed upon his 3 year old shoulders, weighing him down.

I thought it was something we could fix. Or change.

I thought there was a part of him that was not autistic. One that we just had to find.

I was wrong about so many things. I’m going to say it again for the cheap seats in the back. I was wrong. I didn’t understand. I didn’t know. I was scared. And worried. Young. Fearful. So many things.

As he grew into himself, and I grew into autism, I opened my eyes and ears and heart and learned to see and listen and feel.

It was a painful evolution. One that I am incredibly thankful for now.

I’ll tell you a few more things too.

I used to worry that my son was lonely. And I wondered if he was happy.

Because I didn’t know. And at my core as a mom, all I have ever wanted and ever will want, is for my beautiful, smart, funny, amazing boy to be loved and treasured and happy just as he is.

He is ten years old now.

His life is not complex or full of birthday party invites or sporting events.

It’s simpler. It’s his own.

Today, he watched his old black and white train movies. He went for a walk with our family. He ate breakfast and lunch. He studied his books and magazines and lined up his DVD’s. He took a nap.

And I can say with certainty that he is happy. He is actually probably the happiest person that I know.

And lonely? Not a chance.

He has his characters in his shows. His brothers. Neighborhood kids who shout his name when he is walking. Some who even take him into their houses for paper. And a mom and dad who absolutely adore him.

I don’t worry so much anymore. Now that I understand.

It just took me some time to get here. I’m thankful he was patient with me.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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