Walking Through The Storm Alone

So there is a big story in the news right now about the mom who tried to kill her autistic daughter. You can read the store HERE. I have been thinking about this nonstop and contemplated writing about it. And then not writing about it. This is a touchy subject that I normally wouldn’t touch but here is what I will say…

I have never known loneliness like that of a special needs parent.

3158b6db386b31ee0d45205581a88e90First, I don’t condone what she did in anyway. Let me say that first. But what breaks my heart is that she felt that she had no where to turn. This was a good mom. I know that to be a fact.

Raising a kiddo that is autistic is almost impossible to put into words. (Even though I am constantly trying!) It is so unbelievably lonely. There are no thank you’s for being Cooper’s mom. I remember when Cooper was two or so I called my mom crying after a horrible well child appointment. I said something like, “why is it like this? Why is he like this? He’s not normal? I can’t do it anymore!”

What I was trying to convey is that there are very few cute stories or people gushing over him. The high fives and waves and so bigs came late. It all came late. When I think about Cooper he’s just sorta there. When he is noticed he is usually acting out. The moments I remember about Cooper are epic tantrums over hair cuts and meltdowns over movies. Don’t get me wrong, we have special moments too but they are fewer and farther between.

This mom felt trapped. I get that.

Cooper didn’t sleep through the night for years. At one point he was waking up every hour and screaming. Nothing worked. Nothing stopped it. Not white noise or nightlights or blackout blinds. YEARS went by. And he couldn’t poop. Every poop brought on screams and I couldn’t fix it. I would have to lay him down and dig the poop out of his butt. And he couldn’t communicate and he couldn’t do really much of anything. And then the ear infections started. Or maybe he was having them forever. I’ll never know. And I shit you not there were days when I thought about driving off a damn bridge. I was so freaking tired. And so alone. No one understood. Especially me. I would cry the whole way to work and the whole way home. Why was this happening and more specifically, why was it happening to me? I completely lost myself to my child. My child with special needs yet at this point I still didn’t know it.

Jamie and I slipped farther apart. Mostly out of exhaustion. We started doing stuff apart because we couldn’t bring Cooper out in public. And we went to doctor after doctor and called school districts and psychologists and paid copays and bills, went gluten free, tried fish oil and the list goes on. No answers. I lost friends. We both did actually. We stopped going to events. We refused to get babysitters. I cried A LOT. Jamie didn’t know how to deal with me. I was a MANIAC. Yes, it’s true! I sent him blog posts and articles and then I would yell at him if he couldn’t discuss them later. There was no winning for either of us. I was heartbroken and he didn’t know what to do.

I was lost.

If you read the article about this mom they describe her daughter as violent and aggressive. I get it. I don’t condone what she did in anyway. But I get it. She had no where to turn. And my heart breaks for her. I doubt that she ever wanted to hurt her daughter. She probably just wanted a damn break and didn’t know where to turn. She lost hope. She got tired of trying to survive.

I feel that way sometimes. Cooper is going to be 4 and he can do ZERO self care. Last weekend Sawyer helped me change Cooper’s diaper. PUNCH TO GUT. A mom like myself blames herself half the time for not being able to break through. This little girl was older and stronger that Cooper. I can’t imagine.

So…..yeah….that’s all I have to say about that. Judgment is a scary thing. I can’t imagine what that mother’s days were like.

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Finding Cooper's Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you're never alone in the struggles you face. And once you find your people, your allies, your village....all the challenges and struggles will seem just a little bit easier. Welcome to my page!

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When my son was first diagnosed with autism no one was talking about it. Autism was hidden. I vow to change that.
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