Posts Tagged ‘Deafness’
Our Deaf Sons Magical Experience with Father Christmas
We met Father Christmas and what a lovely experience it was! As with most things we do it was not easy, nor was it perfect, but it was amazing! Charlie struggled at times, he didn’t understand the walk through to the grotto. He did count the elves and he said hello to the owls but it was quite overwhelming. At times I felt that familiar feeling of being out of control. I wondered if we’d made a mistake and I worried we were ruining the experience for the other family…
Read MoreChristmas Through My Autistic Son’s Eyes
Christmas is so much. It’s busy, it’s loud, it’s joyful, it’s frustrating, it’s just, a lot. I love it though. I love it for religious reasons, I love being with family, I love yummy treats, and I love presents. I get so caught up in it. I have so many deep seeded memories when it comes to Christmas that I want to recreate them for my kids. I want them to have it all and sometimes I forget to slow down. My son, Jesse is on the autism spectrum and…
Read MoreHearing Aids Are Expensive
Hearing aids are expensive. I will add that at the time we had really good insurance and hearing aids are still expensive. We had to bring a check for $1600 when we picked them up. That is a lot of money to us. So we were pretty stressed out putting the hearing aids on our wild toddler with sensory issues. How the hell is this going to work? I want to add a little info here about the hearing aids themselves. While we waited to get the hearing aids I googled…
Read MoreStop Talking to Your Child
During the two-week wait for the hearing aids our lives got turned upside down. I call this the beginning of the end. The school district came to our house and introduced us to a deaf teacher. This person would help Cooper. She was very, very nice. I actually really like her. We also met a woman from Minnesota Hands and Voices. Also, very nice. But as this progressed we started hearing weird things. Here were the worst two: You may want to stop speaking to Cooper and switch completely to…
Read MoreHearing Aid Fitting
I remember the day that Cooper got his hearing aids so well. I felt sick to my stomach. I want to try and put into words how I felt. First, I didn’t believe that he needed them. I just couldn’t see it. And trust me, I tried. I tried because a hearing loss would explain why he wasn’t talking. Simple, right. He can’t hear so he can’t talk. Get the hearing aids and he will start talking. Since I am obsessed with research and information, I started googling. I scoured…
Read MoreYou're Telling Me Cooper Will Never Hear A Bird Chirp?
The day of Cooper’s tube surgery (Wednesday), the audiologist promised that she would call us back. She never did. I called and left her a message. She finally called me back on Thursday afternoon and asked us to come in on Friday and we could talk more. One important thing to note is that Dr. Alice told me in this conversation that our information had been shared with the school district, the county and the state. I felt weird when she told me that. I asked if it was a…
Read MoreTubes Changed Cooper's Life
So I’ll tell you a few things before I talk about the hearing aids. Cooper came out of surgery mad as hell. Gosh that kid is a fighter. He had an IV and was super distraught. We literally took his gown off, threw a t-shirt on him and took him home. We wanted to be home. We were tired. And overhwhelemed. And so freaking scared that we couldn’t think. On the ride home I kept saying, “he’s going to get teased. I’m not doing it. I’m not putting him in…
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