Welcome To Our Secret World

  • Somewhere in the Middle Of Hope

    Most days you can find me somewhere in the middle of hope at the intersection of not knowing what I’m doing nor where I’m going. This is the life I’ve grown… Read More

  • “You Need To Calm Down”

    Yesterday I decided we needed to get out for one last summer weekend…take a chance with masks, and take a chance with the world. Going out is never simple. Johnny’s… Read More

  • Silence

    Early this morning, I took my middle son, one of the twins who is Autistic, with me to run some errands. I did my usual commute to town which is… Read More

  • I Hear You, I See You, You Are Strong

    I hear you. I see you.  During the pandemic my son with Autism has really regressed. Oppositional Defiance Disorder has come to live in our home and it in itself,… Read More

  • Do You Ever Wonder?

    “Do you ever still wonder what he would be like if he didn’t have Down syndrome?” She asked. It was an honest question from a new friend. She is several… Read More

  • Big Changes

    Things have a way of changing rapidly in our world. Today, this amazing kid started school. The same school as his brother. He is in 4th grade. I never thought… Read More

  • Our Secret World

    Happy Sunday from this kid. We’ve had an interesting day. He asked me for a train guide from 2007. I told him I’d do my best but reminded him that… Read More

  • New Autism Mama

    My name is Carrie. I have five kids and my second son, Jack, is diagnosed with autism. Jack is sixteen. I have lived alongside autism for twenty minus four years.… Read More

  • This Kid is a Keeper

    Someone once said to me…’siblings to children with disabilities are not special. And they shouldn’t be treated as such.’ I’ll tell you this…in all my years of sharing on social… Read More

  • A Perfect World For My Son

    I think a lot about the things that make this kid happy. And bring him joy. Because for a lot of years, the list was pretty small. It’s gotten bigger… Read More

  • To My Son’s Hopefully ‘Never Needed’ Caregiver

    Have you written a letter of intent yet? It is a letter written to the person who will take your child if something happens to you. Here is mine… To… Read More

  • Today Was A Good Day

    Many of you have reached out and asked how Cooper is doing. Thank you! He is amazing. He is struggling but he’s coming out the other side and that is… Read More

  • This Is Regression

    This is the hardest week I remember in a long time. This is regression. This is aggression. This is self-injuring. This is our hardest hard. This is all hands on… Read More

  • Autism Is A Train

    Sometimes I think of my son’s autism as a train. Which is fitting because he loves trains. He stands out and he is unique and loud and messy and amazingly… Read More

  • Letter Of Intent

    In the last week I have had two parents of teenagers on the spectrum tell me to write a letter of intent for my son. Before this week I had… Read More

  • Missing You

    Today was different. For the first time since March, I let out the breath that I didn’t know I was even holding. COVID sure changed everything for us. When I… Read More

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About Me
About Me

Finding Cooper's Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you're never alone in the struggles you face. And once you find your people, your allies, your village....all the challenges and struggles will seem just a little bit easier. Welcome to my page!


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