About Me

I invite you to come along with us on our journey. It is sad, funny, hopeful and heartbreaking. And incredibly real. Welcome to the secret world of nonverbal Autism.

My name is Kate and I am the mama to two wild and crazy boys, Sawyer (age 4) and Cooper (age 6). Cooper has severe, non-verbal autism. As you can imagine, raising a child with a disability has impacted my life in every way possible. While I do work full time as a Digital Project Manager for PBS, my career has been impacted significantly. Autism has many demands and probably should have a mom who is a full-time case manager. But, I need to work…for financial reasons and also my sanity. I’d love to say that I am a well-balanced human with a wide variety of hobbies…but, at this stage in life, my focus is mostly raising my sweet boys and creating the best possible life for Cooper.

Raising a child with special needs is incredibly isolating. And I don’t just mean the physical side…the struggle to leave the house and go places. Yes, that’s a big part of it. But the emotional side is even more isolating. When Cooper was younger I had very few people that understood what I was going through. I pulled away from my friends and family because our journeys were so unbelievably different. And I don’t blame them for that. I blame myself. My life was different. Heck, it still is. I am potty training at age 6. I live in a state of constant chaos and sleep deprivation. My days involve social workers and IEP’s. Blogging was a way for me to put my very normal feelings of isolation out into the world and find the other moms, dads and caregivers that understood. And in doing that I built a village of support around my son. It was the best decision I ever made.

There is an element of grief that goes into raising a child with special needs. That statement offends some people while parents of kiddos with needs are nodding their heads. I was pregnant just like my friends. I pictured the future and raising my sweet little baby. Never once did I factor in having a child with severe needs. I pictured baseball games, funny conversations and bike riding — not doctor’s offices, IEP’s and communication devices. His diagnosis was shocking to me. I felt the need to grieve the little boy that I had pictured in order to accept the life I was given. My advice to parents is to give yourself time to accept your child’s diagnosis. You are human. Cut yourself some slack. And then you will be able to love the child that you have in an even stronger way.

I invite you to follow our journey on Facebook. My goal is to create a community where parents of kiddos with Autism can feel comfortable and understood. Grab a cup of coffee or a glass of wine and come say hi!

I also write for Firefly Community, A place for special needs families to meet, talk and break down life’s barriers. Visit their site to see what I’ve been up too!

If you would like to contact me please email me at FindingCoopersVoice (at) gmail (dot) com

Finding Cooper’s Voice in the Crazy World of Media

On the eve of Autism Awareness Month 2017, Cooper and I had an altercation at a special needs park. Our story went viral. While it was a terrible night and I saw true ignorance, amazing things have came from of it. Our story was featured on CBS, the Star Tribune, The Huffington Post and Love What Matters. Click below to watch our story.

 

 

 

 

 

 

 

 

I have also been featured on UpWorthy, Babble, Huffington Post, Scary Mommy, and The Star Tribune.

 

About Me
About Me

Hi, I'm Kate. I am the mother to a little boy with severe, nonverbal Autism. This is a glimpse into our heartwarming, sad, scary, funny, loving and secret world. Check out my video tab to hear me ramble about Autism.

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