Archive for November 2020
Good People
For almost two years now, my son Jack has wanted a job. He wanted to work. I still don’t know why he chose the place he did—a local pasta restaurant in the center of town. He went online to their website and researched the requirements. Carefully, he printed out the application. He sat at the kitchen counter and answered the questions about his age, birthdate, and previous experience. He asked if he was a US citizen. I assured him he was. They hired him. For over a year, he has…
Read MoreThe Deafening Silence
My son Knox, five, lives each day with non-verbal autism. He has said some words, many sounds, but there is no consistent voice for him. Consistently, there is a deafening silence. A silence that makes my heart drop with each unanswered question I pose to him. A silence that is so loud, it makes me want to scream in pain. Scream in pain for him, for me, and for the voice that our family so longs to hear from him. A silence that is so deafening, it is all I…
Read MoreThankful
‘Along my journey I have learned that the more thankful I am, the more I have to be thankful for.’ Today I was…Woke up at before 6 am by a ‘Mama…wake up!’ Shot in the neck and the butt and everywhere else by Nerf Guns. Negotiated one zillion times over how many days it is until Cooper’s birthday. Cleaned every surface area of my house a dozen times. Wiped pee off the toilet seat every time I had to use it. (Life with boys!) Broke up fights. Kissed boo-boos. Got…
Read MoreA Reward for Cooper
Yesterday, Cooper’s dad and I took him to the paper store. He picked it as his reward for having an amazing week at school. Parents outside our world probably don’t know that understanding rewards and incentives and motivation is a huge deal. Something we hope and pray for! Cooper didn’t understand any of it until this year. Age 9. That also meant he was pretty hard to spoil. But not anymore. Something clicked and he is now independently able to pick where and what he wants to work for. Last…
Read MoreDora the Pirate
I’d love to bring you a smile today. Because over here we are grinning from ear to ear. A week or so ago, my son Cooper took an interest in Dora the Explorer. But not just any Dora. Because she has always been his favorite. He wanted to dress like Pirate Dora. He wanted her hat, jacket, backpack and black boots. He wanted to board a pirate ship and search for mermaid rock. He wanted a pet monkey named Boots. He wanted whatever the pig characters were too. He asked…
Read More2020 Thanksgiving…An Autism Moms dream
Thanksgiving used to be my favorite holiday. I have lots of cousins (from my mom’s side)and that was the day we all got together when I was younger and even as I became an adult. It was the one day of the year that I knew I could go “home” and be brought back to childhood. In 2012, my grandmother celebrated her last Thanksgiving and it was never the same for me. After my son Caleb was born I wanted to recreate those family holiday memories for him. We moved…
Read MoreWhat Are Your Expectations?
I remember my very first autism workshop about 3 years ago like it was yesterday. Sitting in a room filled with other autism moms and dads, I didn’t know what to expect. Not knowing, that day would be one of the most important days of my life. Being surrounded by people who had the same questions, same worries, same fears, it gave me the opportunity to openly discuss autism for the first time, and made me realize that we’re not alone on this autism journey. The first question directed at…
Read MoreThank You For Including My Son
Disclaimer: Due to privacy concerns, names have been changed to protect the identity of minors. There’s a little girl in my son Nicholas’s class. I’ll call her “E.” Nicholas and E just met this year in Kindergarten. They like to play outside together. They like to sit by each other in school. They even like to hold hands. You may think this is a typical friendship story. A cute little love story. You may think you’ve already heard this story before. But this is different. This is a story of…
Read MorePublic Schools Accused of Defrauding Special Education Students During Pandemic Nationwide
Our lives are often broken up by dates that mark significant events that change us. Our wedding dates, the birthdays of our children, the death of a family member we loved and cherished.. And for parents in 2020, there are various dates throughout the second week of March that will stay with them forever. For us, March 11th 2020 is the day our world stopped. My husband began working from home, my small business was forced onto a virtual platform, and so were our therapies for our six year old…
Read MoreWill Getting A Diagnosis Be Harder Because She’s a Girl?
I have been watching my daughter over the past couple of months, as many of us who have multiple children do, after an autism diagnosis. It is evident at this point, that she has a significant speech delay in expressive language, the words she can speak, and her receptive language, the words she understands. I have been tallying…does she make eye contact, does she point? We cannot gauge her social interactions with children her age as she has been home since March. This second time around, I have been watching…
Read More