Archive for September 2014
A Humbling Experience
Last Friday Jamie and I visited Cooper’s new school. During the first portion we met as usual, in a tiny room, with Cooper’s psychologist and the Intake Coordinator. It went well. We talked about goals and expectations. Every kiddo that starts at Fraser begins with the same goals. They range from eye contact to stopping and when asked and playing with toys. My two concerns with Cooper starting school are: I need to know that they are going to challenge him. When Cooper is even the tiniest bit challenged he…
Read MoreWe Don't Need Action Super Heroes Anymore
I can relate to this so much. Greatest fears: I am scared that I am going to die before Cooper can live an independent life. And, that he’s never going to talk.
Read MoreFalse Hope is Brutal
I had a close friend over this weekend to help us with our house remodel. 17 times, yes I counted, he said, “I think Cooper is going to talk someday.” He was so hopeful. “I just know it Kate, he is going to talk. Don’t give up hope. He’s so close.” And it went on. “It’s going to happen. We just need to break through.” How dare he? He has no facts. No medical knowledge of the situation. I don’t think he’s ever heard of Apraxia or read a sentence…
Read MoreAutism for Cooper Comes and Goes
So as a new Autism parent I find myself muttering the words, “I freaking hate Autism” on a regular basis. Actually, in our house we call it ‘Tism.’ Short, sweet and almost cute. We always tell Cooper we are going to tickle the Tism right out of him. Cooper has been a happy kid lately. Part of it is because we aren’t going to therapy right now. We aren’t challenging him. But the other reason is that we have successfully removed a lot of Cooper’s triggers. Many of these will make…
Read MoreWalking Through The Storm Alone
So there is a big story in the news right now about the mom who tried to kill her autistic daughter. You can read the store HERE. I have been thinking about this nonstop and contemplated writing about it. And then not writing about it. This is a touchy subject that I normally wouldn’t touch but here is what I will say… I have never known loneliness like that of a special needs parent. First, I don’t condone what she did in anyway. Let me say that first. But what…
Read More